CF Fact File

Doing a Project or Want Some Facts?

CF affects your lung function - Coen has use of around just 30% of his lungs

We get a number of emails and calls from people undertaking projects on Cystic Fibrosis, and Coen for school or university – we are delighted to help out where we can.
We hope to expand this section over time, providing information and answers to frequently asked questions to help you undertake your projects. Whilst we are busy compiling all of this,  we have included some quick Cystic Fibrosis facts and great videos which explain what CF is in the section below.
Be sure to check back again soon to see what we have added. In the meantime, if your do require further information please contact us.

What is Cystic Fibrosis?

  • Cystic Fibrosis (CF) is the most common life-threatening inherited disease in Australia.
  • It is caused by a faulty gene that controls the movement of salt and water in and out of the cells within the body.
  • Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
  • If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
  • Currently half of the CF population will live past 41 years of age, and improvements in treatments mean a baby born today is expected to live even longer.

(information from CF UK)

CF Explained

Here are two short animations which give us a great overview of what is like to be young person with CF 

Find out more about CF